WE ARE LMNA

Elsie Claire was Diagnosed at 18 months with a rare form of muscular dystrophy called LMNA-CMD. There is currently no treatment and no cure but research is now being conducted on this mutation. Elsie Claire is 1 of 150 world wide.

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Our Mission

Our Mission is to accelerate research, advance treatments, and improve the lives of individuals living with LMNA related muscular dystrophy by funding innovative research, connecting families, and building a global community of hope.

Understanding Laminopathy

A comprehensive guide to the genetic basis of LMNA-CMD and the latest research findings.

Latest Updates

Empowering lives through education and community stories.

Advancing Research

Exploring the breakthroughs in gene therapy and how they are paving the way for future treatments.

Community Stories

Real-life journeys of resilience and hope from families across the country.

Your Support

Your support helps us bridge the gap in research and care for those affected by LMNA-CMD. Every contribution, no matter the size, fuels our mission to empower lives and inspire hope through education and community.

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Our Community

A collection of heartfelt moments and family connections that inspire hope and unity for every journey we walk together.

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